Why ?? Why ?? Why ??
It seems as soon as we hear the diagnosis T-1-Diabetes we turn blind, deaf, and stupid.
The clinic, diabetes educator, or endocrinologist tells us our kids are well stabilized with either an intensive treatment scheme, based on long acting bolus and rapid acting as required according to lifestyle and eating habits.
So we go home and after the shock has worn down we duly either inject or let our kids inject themselves with some long-acting insulin (Levemir or Lentus) and fast-acting (Rapid, or Humalog or Actrapid) before meals.
Then OOOHHH SHOOOOOOOCK our kids start having HYPOS and we learn the scary part of Diabetes.
THE UNEXPLAINED & UNEXPECTED HYPOS.
So we stop sleeping or share with our husbands and wives nightly check-ups and BG-tests.
OHHHH SHOOOOOOOOCK DESPITE OUR BEST EFFORTS
STILL UNEXPLAINED UNEXPECTED HYPOS.
The endo visits drive us nuts. They tell us we’re doing a bad job because we’re giving our kids too much leeway. As evidence they show us our kids’ HbA1C values, which are at best somewhere between 6.9 and 9.2
Distraught we go home, blaming ourselves, our husbands or wives, and our kids.
The stress is not just getting to us but often the family is on the brink of disaster and/or breakup.
Things get worse and worse. Finally we listen to the Endo and swap our kids over to a pump.
As we leave the clinic, after an intense pump training week, the smiling Endo tells us now everything will be perfect and the next time we see him/her the HbA1C will be 6.5 or better.
After the first week and return to normal routine, we’ve instructed the school, feel totally relaxed and hyper-confident.
- SURPRISE disaster hits again.
Back in Hospital another intense training week. We know we followed instructions and did everything humanly possible.
STILL WE GET BLAMED FOR GETTING IT WRONG AND NOT SUPERVISING OUR KIDS PROPERLY.
Surreptitiously the Endo hands us a pile of stories about kids dying in their sleep and our world breaks down.
NOW TO THE GOOD PART
Most Endos are paid by the industry to mislead their patients.
Most Endos never tell their patients and/or parents that the body actually makes 16 types of insulin.
- A healthy person can drink an entire bottle of coke without a BG-rise above 6.5
- That’s a socalled Instant Insulin which works within a fraction of a second.
- The body also produces an Insulin that has a peak longterm performance of 96h
- None of these insulins the industry can manufacture
Considering just these basic facts
- how can we ever get good BG-control with a single fast-acting insulin via pump?
- or with one long-acting bolus and fast-acting before mealtimes?
We’ve now had over 52 years of combined professional Endo-experience and since we routinely set all T-1-Diabetics on
Not one of the over 1000 T1s in our professional Endocare have ever had another serious HYPO
AND THEIR HBA1C IS BETWEEN 5.7 AND 6.4
- 237 Going to the big girl endo! (and it’s just data) (mindydiabetes.wordpress.com)
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- Diabetes in Kids (hermanajuli.wordpress.com)
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